PSXE'S official Bowel Disease thread. D:

[Mr. SunburnMan]

Yeah, I was tired of spamming up the other thread with magoosh!.

Im not on steroids now *thank god* I took steroids on two horrible seperate flare ups and they have destroyed my body.Im taking something called 6mp now.

STEROIDS = THE DEVIL

I'm surprisingly resistant to steroids, so they haven't destroyed me at all. Though they're making my face look puffy, destroying my taste buds. What destroyed me is anemia. One can only lose so much blood before taking a hit, and well, during the Christmas break, my anemia was so bad that I considered climbing the stairs (for 1 level) an extremely tedious exercise.

I've had colitis for about two years. Last fall my flare-up almost killed me. Couldn't even move my neck because my intestines became porous and bacteria infected my body.

Now how about those colitis inspections eh. So comfortable.

[Magoosh!]

"Now how about those colitis inspections eh. So comfortable."

That wasnt fun but atleast they knocked me out

Lets see I have had Ulcerative Colitis since I was 17 which makes it about 6 years with this disease.Had such a bad case of Colitis at first that nothing worked except for Steroids.My side effects were the puffy face *known as moon face*,stretch marks on my back and legs,hot flashes,leg cramps and nite sweats.Eventually my Doc decided to take me off them but again my Colitis flared up big time and I started bleeding and dropping weight fast.So they but me back on the devil drug,but this last time the med's just started really hurting my body.For some reason they strated affecting my teeth and destroying the calcium that protects teeth from cavities.Also made my bones very weak

He decided to try 6mp on me,a drug that takes atleast 4 months to work.Its surpresses the immune system like a cancer drug.In the first month if you have no side effects from it you can stay on it,luckly I have found my some - what miracle drug and have been on it for 3 years.

I could go on and on in greater detail about my dieases and what else it has done to me,but its sucks just talking about it

Sunburn if you need to ask me any questions about steroids or the disease,feel free to ask

[Magoosh!]

My Docter Keith Benkov ... dont know who the kid is

[nice shirt]

whats colitus?

[Magoosh!]

Nice Shirt,its called Ulcerative Colitis and heres some info..

http://health.yahoo.com/health/cente...stive/186.html

[Tosser00]

Someone wned: me please.

[nice shirt]

damn man. that sucks. doctors dont even know what causes it. stupid science (or lack of).

[Arnold K. (Admin)]

I'm well aware about the disease since speaking to Addam about it. Though, Sunny, I had no idea that was the reason you were ill back in December. Damn.

[Mr. SunburnMan]

Yeah, I've had the night sweats too, forgot about that one. Right now I'm on steroids (7 doses a day), then I'm on those 6mp too, I think that's what it is. The doctor told me that it would start having effect about 3 months after I started taking them (it's been 2 now). They used to be used for cancer treatment in the 50s. As far as bones getting weaker, I've been drinking Calcium-enriched OJ like a madman so I wouldn't have that problem.

I've had occasional flareups poping up though. So far the best solution to the problem are enemas ( ) - though I've gotten used to them in a way, since they work so damn well. And I don't really mind talking about those sorts of things... ( ) They get rid of the bleeding in a day. Of course the insertion point is a problem, but as I said - you get used to the idea at that point when you have colitis. That was upon the suggestion of one of my old man's coworkers who also has the disease.

His daughter (one of my friend's ex) also has the disease, and she had to have her whole intestines removed. Though she looks fine now (you wouldn't be able to tell), and she's cured.

I've also been told that food may worsen the flare ups, but I have yet to find a particular food, besides lactose, that would worsen the situation. All that I know is that the lack of sleep and stress is no good. Which is why things went quite badly last October, as mid-term season approached.

Last october was pure crap. I'd have intense diarhea and bleeding, and intense abdominal cramps. So intense, in fact, that every time I went to the bathroom, I also vomited, since the cramps were so strong. Then there was anemia and the neckpain and bacteria infection mixed in. I was not pretty (I had a nice green tone).

Anyway.. My current flare up is weird. I've had it for about 2 weeks, but with none of the symptoms except the blood. No aches, no anemia, no diarhea. Every flareup is different. I hate this.

Edit : I also found a site with actual pictures of a colitised intestine. If anyone wants it, I'll post a link. :[

[Magoosh!]

Yea Colitis is one odd diease,one minute you can have a normal bowl movement the next minute your just passing blood or mucous


As for foods,my doc says that they can cause flare-ups sometimes.I have problems eating spicy foods and milk products.Its odd because sometimes I can eat stuff like that and have no problem and other times I get sick from it.I mean just the other day I ate a raw apple and its totally made me sick,tons of gas and cramping but usually in the past I have no problems eating them.I have had this disease for 6 going on 7 years and I still dont undersatnd it fully

"All that I know is that the lack of sleep and stress is no good. "

Bingo,both my grandparents had passed away within a year of eachother when my colitis showed up Im an uptight person and always nervous,so this disease wrecks havoc on me a lot more than it should.

It also sounds like your taking 6MP,hopefully it will work for you too and then you can get off the steroids